Leveraging Data To Improve The Lives Of Georgians With Sickle Cell Disease And Thalassemia
When it comes to sickle cell disease – a condition that can cause severe pain, fatigue, organ damage, stroke and death – Georgia State University is using the power of data to help improve the lives of those who live with the condition.
The Georgia Health Policy Center at Georgia State is the hub for the state’s efforts to use data from public health, hospitals and insurance to better understand who lives with sickle cell disease, how and where they seek care and whether they receive treatment based on best practices. GHPC, a part of the Andrew Young School of Policy Studies, has served as Georgia’s Hemoglobin Disorders Data Coordinating Center since its inception in 2011.
The Sickle Cell Data Collection program leverages surveillance data to improve and extend the lives of people with sickle cell disease. Work by the center is helping policymakers, public health and health systems determine strategies to improve access to specialists, such as workforce incentives and telemedicine, and target services where need is identified through geographic analysis.